In the 2017 and 2019 National Surveys on Disability and Health, the Collaborative on Health Reform and Independent Living (CHRIL) included an open-ended question on health policy, “What would you like policymakers to know about access to health insurance or health care for people with disabilities or chronic health conditions?” (see resulting paper at journals.sagepub.com/doi/full/10.1177/1044207320956679). CHRIL researchers also conducted a series of semi-structured video interviews with disability advocates at the WSU Accessibility Center and at annual meetings of the National Council on Independent Living and the Association of Programs for Independent Living. We asked about personal experiences with the US healthcare system and perspectives on needed policy reform. A thematic analysis was conducted with the interview transcripts, and a documentary filmmaker was hired to create short vignettes for the Disability Stories Project website at www.chril.org/stories.
Jae Kennedy, PhD is principal investigator for the NIDILRR-funded Collaborative on Health Reform and Independent Living (CHRIL). He is a professor of Health Policy and Administration at Washington State University and is immediate past president of NARRTC.
Jean P. Hall, PhD is the director of the Institute for Health and Disability Policy Studies and a professor in the Department of Applied Behavioral Science (University of Kansas). She leads the Rehabilitation Research and Training Center on Promoting Interventions for Community Living (RRTC-PICL).
Noelle K. Kurth, MS is a Research Associate at the University of Kansas Institute for Health and Disability Policy Studies, Life Span Institute.
Davi Kallman, PhD is an Access Advisor at Washington State University.
Karen Colorafi, PhD, MBA, RN is Assistant Professor of Nursing, Gonzaga University.
Jason DaSilva, MFA, is an independent filmmaker/director and founder of AXS LAB.
Moderator: Joann Starks